Latest news with #neuromuscular disease
Yahoo
3 days ago
- Health
- Yahoo
Tennis star Monica Seles reveals her diagnosis with myasthenia gravis
Monica Seles first noticed the symptoms of myasthenia gravis — a neuromuscular autoimmune disease she discussed during a recent interview with The Associated Press — while she was swinging a racket the way she'd done so many times during, and after, a career that included nine Grand Slam titles and a place in the International Tennis Hall of Fame. 'I would be playing with some kids or family members, and I would miss a ball. I was like, 'Yeah, I see two balls.' These are obviously symptoms that you can't ignore,' Seles said. 'And, for me, this is when this journey started. And it took me quite some time to really absorb it, speak openly about it, because it's a difficult one. It affects my day-to-day life quite a lot.' The 51-year-old Seles, who won her first major trophy at age 16 at the 1990 French Open and played her last match in 2003, said she was diagnosed with myasthenia gravis three years ago and is speaking publicly about it for the first time ahead of the U.S. Open, which starts on Aug. 24, to raise awareness about what is known as MG. The National Institute of Neurological Disorders and Stroke calls it 'a chronic neuromuscular disease that causes weakness in the voluntary muscles' and 'most commonly impacts young adult women (under 40) and older men (over 60) but ... can occur at any age, including childhood.' Seles said she'd never heard of the condition until seeing a doctor and being referred to a neurologist after noticing symptoms such as double vision and weakness in her arms — 'just blowing my hair out ... became very difficult,' she said — and legs. 'When I got diagnosed, I was like, 'What?!'' said Seles, who is partnering with argenx, an immunology company headquartered in the Netherlands, to promote their Go for Greater campaign. 'So this is where — I can't emphasize enough — I wish I had somebody like me speak up about it.' It's been three decades since Seles returned to competition at the 1995 U.S. Open, making it to the final, more than two years after she was attacked by a man with a knife at a tournament in Hamburg, Germany. 'The way they welcomed me ... after my stabbing, I will never forget,' Seles said about the fans in New York. 'Those are the moments that stay with you.' She talks about learning to live a 'new normal' nowadays and characterized her health as another in a series of life steps that required adapting. 'I had to, in tennis terms, I guess, reset — hard reset — a few times. I call my first hard reset when I came to the U.S. as a young 13-year-old (from Yugoslavia). Didn't speak the language; left my family. It's a very tough time. Then, obviously, becoming a great player, it's a reset, too, because the fame, money, the attention, changes (everything), and it's hard as a 16-year-old to deal with all that. Then obviously my stabbing — I had to do a huge reset," Seles said. 'And then, really, being diagnosed with myasthenia gravis: another reset. But one thing, as I tell kids that I mentor: 'You've got to always adjust. That ball is bouncing, and you've just got to adjust,'' she added. "And that's what I'm doing now.' ___ Howard Fendrich has been the AP's tennis writer since 2002. Find his stories here: More AP tennis: Howard Fendrich, The Associated Press
News.com.au
4 days ago
- Health
- News.com.au
Tennis legend Monica Seles diagnosed with rare disease
Tennis great Monica Seles revealed she has been diagnosed with a rare muscle-weakening condition. Seles, 51, started experiencing double vision and extremely depleted strength in her arms and legs in 2019, The Sun reports. A long string of tests and scans - delayed by the Covid pandemic - ruled out brain tumours and motor neurone disease. The nine-time Grand Slam champion was eventually diagnosed with myasthenia gravis (MG) in 2022. Now Seles has gone public on neuromuscular auto-immune disease - which currently has no cure - and will raise awareness for the condition with an event around this month's US Open. MG affects most of the body but particularly the muscles that control the eyes - although symptoms can vary from day to day. Approximately 15-20 people per 100,000 - or 0.015 per cent of the population - are affected by MG, which sees the immune system attack the neuromuscular junction where nerves and muscles communicate. 'I would be playing (tennis) with some kids or family members, and I would miss a ball,' Seles told AP. 'I was like, 'Yeah, I see two balls.' 'These are obviously symptoms that you can't ignore. 'It took me quite some time to really absorb it, speak openly about it, because it's a difficult one. 'It affects my day-to-day life quite a lot.' Seles won seven of her nine Grand Slams by the age of 18. That included reaching eight Major finals in a row - winning seven - before she was tragically stabbed in April 1993 on court during a match in Hamburg by a fixated fan of Steffi Graf. The Yugoslavia-born star - who switched nationality to USA - returned in 1995 after a two-year absence. She reached the US Open final in her first Major since the stabbing then won the 1996 Australian Open, her ninth and final Grand Slam title. The lefty, who played with a double-handed forehand and backhand, officially retired in 2008 five years after her final competitive match. Now living in Florida, she told The Athletic about her MG diagnosis: 'I thought, 'OK, just push through it.' 'But a couple of instances happened when — on court and in daily life — I realised there was something going on. 'After coming out of my former country to the IMG Academy, I had to totally reset. 'When I became No1, it was a huge reset because everybody treats you differently. 'Then obviously when I got stabbed, that was a huge reset. And then when I was diagnosed, it was a huge reset. 'The day-to-day part of managing it, depending on my symptoms, is really adjusting, you know. I think anybody else who has Myasthenia Gravis knows it's a continuous adjustment. 'After my stabbing, I had to deal with that internally for quite a few years to process it and my MG diagnosis was kind of very similar. 'I had to understand my new normal of day-to-day life, what I can do work-wise and different things.'
CNN
4 days ago
- Health
- CNN
9-time grand slam champion Monica Seles reveals her diagnosis with myasthenia gravis
Monica Seles first noticed the symptoms of myasthenia gravis — a neuromuscular autoimmune disease she discussed during a recent interview with The Associated Press — while she was swinging a racket the way she'd done so many times during, and after, a career that included nine grand slam titles and a place in the International Tennis Hall of Fame. 'I would be playing with some kids or family members, and I would miss a ball. I was like, 'Yeah, I see two balls.' These are obviously symptoms that you can't ignore,' Seles said. 'And, for me, this is when this journey started. And it took me quite some time to really absorb it, speak openly about it, because it's a difficult one. It affects my day-to-day life quite a lot.' The 51-year-old Seles, who won her first major trophy at age 16 at the 1990 French Open and played her last match in 2003, said she was diagnosed with myasthenia gravis three years ago and is speaking publicly about it for the first time ahead of the US Open, which starts on August 24, to raise awareness about what is known as MG. The National Institute of Neurological Disorders and Stroke calls it 'a chronic neuromuscular disease that causes weakness in the voluntary muscles' and 'most commonly impacts young adult women (under 40) and older men (over 60) but … can occur at any age, including childhood.' Seles said she'd never heard of the condition until seeing a doctor and being referred to a neurologist after noticing symptoms such as double vision and weakness in her arms — 'just blowing my hair out … became very difficult,' she said — and legs. 'When I got diagnosed, I was like, 'What?!'' said Seles, who is partnering with argenx, an immunology company headquartered in the Netherlands, to promote their Go for Greater campaign. 'So this is where — I can't emphasize enough — I wish I had somebody like me speak up about it.' It's been three decades since Seles returned to competition at the 1995 US Open, making it to the final, more than two years after she was attacked by a man with a knife at a tournament in Hamburg, Germany. 'The way they welcomed me … after my stabbing, I will never forget,' Seles said about the fans in New York. 'Those are the moments that stay with you.' She talks about learning to live a 'new normal' nowadays and characterized her health as another in a series of life steps that required adapting. 'I had to, in tennis terms, I guess, reset — hard reset — a few times. I call my first hard reset when I came to the US as a young 13-year-old (from Yugoslavia). Didn't speak the language; left my family. It's a very tough time. Then, obviously, becoming a great player, it's a reset, too, because the fame, money, the attention, changes (everything), and it's hard as a 16-year-old to deal with all that. Then obviously my stabbing — I had to do a huge reset,' Seles said. 'And then, really, being diagnosed with myasthenia gravis: another reset. But one thing, as I tell kids that I mentor: 'You've got to always adjust. That ball is bouncing, and you've just got to adjust,'' she added. 'And that's what I'm doing now.'
CNN
4 days ago
- Health
- CNN
9-time grand slam champion Monica Seles reveals her diagnosis with myasthenia gravis
Monica Seles first noticed the symptoms of myasthenia gravis — a neuromuscular autoimmune disease she discussed during a recent interview with The Associated Press — while she was swinging a racket the way she'd done so many times during, and after, a career that included nine grand slam titles and a place in the International Tennis Hall of Fame. 'I would be playing with some kids or family members, and I would miss a ball. I was like, 'Yeah, I see two balls.' These are obviously symptoms that you can't ignore,' Seles said. 'And, for me, this is when this journey started. And it took me quite some time to really absorb it, speak openly about it, because it's a difficult one. It affects my day-to-day life quite a lot.' The 51-year-old Seles, who won her first major trophy at age 16 at the 1990 French Open and played her last match in 2003, said she was diagnosed with myasthenia gravis three years ago and is speaking publicly about it for the first time ahead of the US Open, which starts on August 24, to raise awareness about what is known as MG. The National Institute of Neurological Disorders and Stroke calls it 'a chronic neuromuscular disease that causes weakness in the voluntary muscles' and 'most commonly impacts young adult women (under 40) and older men (over 60) but … can occur at any age, including childhood.' Seles said she'd never heard of the condition until seeing a doctor and being referred to a neurologist after noticing symptoms such as double vision and weakness in her arms — 'just blowing my hair out … became very difficult,' she said — and legs. 'When I got diagnosed, I was like, 'What?!'' said Seles, who is partnering with argenx, an immunology company headquartered in the Netherlands, to promote their Go for Greater campaign. 'So this is where — I can't emphasize enough — I wish I had somebody like me speak up about it.' It's been three decades since Seles returned to competition at the 1995 US Open, making it to the final, more than two years after she was attacked by a man with a knife at a tournament in Hamburg, Germany. 'The way they welcomed me … after my stabbing, I will never forget,' Seles said about the fans in New York. 'Those are the moments that stay with you.' She talks about learning to live a 'new normal' nowadays and characterized her health as another in a series of life steps that required adapting. 'I had to, in tennis terms, I guess, reset — hard reset — a few times. I call my first hard reset when I came to the US as a young 13-year-old (from Yugoslavia). Didn't speak the language; left my family. It's a very tough time. Then, obviously, becoming a great player, it's a reset, too, because the fame, money, the attention, changes (everything), and it's hard as a 16-year-old to deal with all that. Then obviously my stabbing — I had to do a huge reset,' Seles said. 'And then, really, being diagnosed with myasthenia gravis: another reset. But one thing, as I tell kids that I mentor: 'You've got to always adjust. That ball is bouncing, and you've just got to adjust,'' she added. 'And that's what I'm doing now.'
ABC News
4 days ago
- Health
- ABC News
Tennis legend Monica Seles reveals myasthenia gravis diagnosis as her latest 'hard reset'
Monica Seles first noticed the symptoms of myasthenia gravis while she was swinging a racquet the way she had done so many times. The 51-year-old Seles, who won the first of her nine major trophies as a 16-year-old at the 1990 French Open and played her last match in 2003, said she was diagnosed with the neuromuscular autoimmune disease three years ago and is speaking publicly about it for the first time ahead of the US Open, which starts on August 24, to raise awareness about what is known as MG. "I would be playing with some kids or family members, and I would miss a ball. I was like, 'Yeah, I see two balls.' These are obviously symptoms that you can't ignore," Seles said. "And, for me, this is when this journey started. And it took me quite some time to really absorb it, speak openly about it, because it's a difficult one. It affects my day-to-day life quite a lot." According to the US National Institute of Neurological Disorders and Stroke: "[MG is] a chronic neuromuscular disease that causes weakness in the voluntary muscles" and "most commonly impacts young adult women (under 40) and older men (over 60) but … can occur at any age, including childhood." It can lead to problems with speaking, chewing, swallowing and breathing, and while many complications are treatable, some can be life-threatening. Seles said she had never heard of the condition before seeing a doctor and being referred to a neurologist after noticing symptoms such as double vision and weakness in her legs and arms, when even "just blowing my hair out … became very difficult". Do you have a story idea about women in sport? Email us abcsport5050@ The tennis legend said she wished at the time of her diagnosis, she "had somebody like me speak up about it". She talks about learning to live a "new normal" nowadays and characterised her health as another in a series of life steps that required adapting. This year marks three decades since Seles returned to competition and reached the final at the 1995 US Open, more than two years after she was attacked by a man with a knife at a tournament in Hamburg, Germany. "I had to, in tennis terms, I guess, reset — hard reset — a few times," she said. "I call my first hard reset when I came to the US as a young 13-year-old [from Yugoslavia]. Didn't speak the language; left my family. It's a very tough time. "Then, obviously, becoming a great player, it's a reset, too, because the fame, money, the attention, changes [everything], and it's hard as a 16-year-old to deal with all that. "Then obviously my stabbing — I had to do a huge reset. "And then, really, being diagnosed with myasthenia gravis: another reset. But one thing, as I tell kids that I mentor: 'You've got to always adjust. That ball is bouncing, and you've just got to adjust'. And that's what I'm doing now." AP
